Jigsaw Cumbria’s Only Children’s Hospice Celebrates National Children’s Hospice Week

Jigsaw, the only children’s hospice in Cumbria is joining other hospices across the UK to celebrate national Children’s Hospice Week 2022 and highlighting the incredible care and support offered by these amazing charities. 

Children’s Hospice Week, led by children’s palliative care charity Together for Short Lives, runs from today, Monday June 20 and celebrates the incredible work children’s hospices do for seriously ill children and their families.

Based in Carlisle but caring for babies, children and young people from all corners of Cumbria, Jigsaw is the only such facility in the county and relies predominantly on the generosity of the local community to keep providing this vital service. 

The charity must raise £2,126.46 to pay for its care services for one whole day.  

This year’s Children’s Hospice Week theme is #ForTheChildren, which highlights the core purpose of children’s hospices.

Everything they do is #ForTheChildren helping families make the most of their lives together, no matter how short.

Suzanne Garbarino, Clinical Lead at Jigsaw, said: “Jigsaw is an incredibly special place filled with fun and laughter where children and young adults can stay and create memories which will last a lifetime.

“It’s a pleasure to care for the amazing children who are part of Jigsaw and support their wider network of family and carers.

“We’d like to use Children’s Hospice Week to thank everyone who supports Jigsaw throughout the year with fundraising, volunteering and the other very generous ways in which our community helps.” 

To find out more about how you can support Jigsaw, go to jigsawhospice.org/.

This is Max’s story.

Seven-year-old Max Dickinson’s mum Gillian admits that Jigsaw has been a lifeline for her family.

Max, from Carlisle, who has a genetic duplication called 5p13 duplication syndrome which was discovered after he started showing seizures when he was 11 months old, has been supported by the dedicated hospice staff since he was around four years old.

“Max loves the attention from all the staff, spending time in the sensory room and going to the park, he loves baking but mostly the eating of the baking goods,” said Gillian.

And while Max loves spending time in Jigsaw and gets so much from his care, his visits also mean the world to his family.

Gillian added: “Jigsaw has been a lifeline for us and means we can spend time with my daughter Eve, often Max takes a lot of looking after and somethings Eve enjoys doing we can’t do with Max and vice versa.

“Also, Max isn’t the best sleeper so it gives us a night where we can sleep and recharge our batteries.”

The safety and security of Jigsaw means that when Max is staying his family have complete peace of mind.

“We never worry about Max when he’s at Jigsaw as they know him so well and take care of him which is a big weight of our mind.” Gillian said.

To find out more about how you can support Jigsaw, go to jigsawhospice.org/.

This is Jordan’s story.

For more than a decade, Jigsaw was a home from home for Jordan Mossom and his family.

Jordan lived with Duchenne Muscular Dystrophy and before passing away in April this year, 2022, he worked extremely hard to raise awareness of his condition which is characterized by muscle degeneration and weakness.

Jordan was a much-loved member of the Jigsaw family and loved spending time with the team and his peers.

His sister Hannah says: “Jordan had been going to the hospice for over 12 years.

“We are incredibly grateful for their amazing work and all of the happy memories Jordan has made there.

“Jigsaw was like a home from home for us and the support they gave us as a family was brilliant but not everyone knows about it so we want to help make more people aware of it and how important it is to have a facility like this in Cumbria.”

Not only did Jordan receive dedicated care from the expert staff at Jigsaw, but his wider family network was also supported over a number of years, including mum Clare O’Brien, sisters Olivia and Hannah and brother Kieran.

Clare said: “I would love everyone around Cumbria to realise there is this incredible place called Jigsaw, that it is Cumbria’s children’s hospice, and it is there to help people, so we need everyone to support it.

Jordan, who was from Maryport in west Cumbria, gained a degree in Photography at the University of Cumbria, aged 23.

For his final major project, titled ‘Daytime Disability’, Jordan showed a biographical look at his day-to-day life with DMD.

To find out more about how you can support Jigsaw, go to jigsawhospice.org/.